@pcpldNetwork #PCPLD Presenters: Elizabeth Tilley & Lorna Rouse (Open University) Chairs: Richard Keagan-Bull & Irene Tuffrey-Wijne (Kingston University) The Victoria & Stuart Project is about finding ways to support people with learning disabilities to be involved in their own end of life care planning. But we don’t need to re-invent wheels, so… what is already out there? What guidance already exists, and what resources have been developed? In this webinar we will talk to you about the work we did to find answers to these questions. We launched a survey that was shared across the learning disability sector, asking people to tell us about resources they use or know about. We also undertook a careful review of the published research literature, and searched for policy and guidance documents. The next stage of our work was to assess what we had found, in order to come up with a short-list of approaches, resources and tools that looked most useful for the next stage of the project: developing a toolkit of resources and guidance, to be tested within learning disability services later this year. In the webinar we will share with you what we learned during the “scoping the existing resources and literature” stage of the project. The webinar is presented by Liz Tilley and Lorna Rouse at Open University (who did the scoping review). It is chaired by Irene Tuffrey-Wijne and Richard Keagan-Bull who lead the work on the Victoria & Stuart Project. It will be of interest to anyone working with people with learning disabilities, anyone working with people at the end of life, families and carers, policy makers and commissioners. People with learning disabilities are also welcome to watch the webinar. Some of the webinar is accessible, but there may be some difficult words and concepts. We recommend that you don’t watch it on your own, but with other people; and that you take some time to talk about it together afterwards.