"Death of a sibling from illness: Parents let the sister see her brother's dead body." Death of a sibling from illness: We let Julia, the big sister, see the dead body. https://youtu.be/DlLPJYRx7Kw Parents of two children who die from a rare metabolic disorder learn from the first child's death that their oldest daughter needed to see the dead body to help understand death. The pastor helps them find a way to show the body." Julia was capable of saying good-bye to her brother's body." "You can't have great love without great loss." If your child has a metabolic disorder or another pediatric life threatening illness, these parents share their perspective which may help you find your way. Visit www.courageousparentsnetwork.org for more videos.

gauvincourageous parents networkparental bereavementchild lossrare disease and siblingspc deficiencymetabolic acidosis